Monday, October 3, 2011

Sweet girl

Reagan has been a sweetie again today. She was up a little last night. I woke up around 3:30am to her "talking" to herself. She eventually went back to sleep and then woke up giggling up a storm at 7am. I can't tell you how great it is to see that smile each morning! We are definitely loving these good days!!! She's been super precious all day today. She had her usual private speech therapy, which she did great for, and then had speech through the school system (which I think she's only had one other time), and everyone was thrilled to see her in such a great mood today!!! We didn't make it on the tryke today, but her PT is coming tomorrow so she'll probably show it off during therapy tomorrow. Tonight we've got the night nurse again. Hopefully we can avoid the drama that happened the last time she was here (Reagan's feeding pump not working and trying all night long to get a replacement)! The DME company actually brought back the pump we were having all the problems with (saying they ran it and it worked fine for them), but they're letting us keep the loaner too. So at least now we'll have a back up if needed. I love how these DME companies like to act like you're the complete idiot and that they can get your pump to run just fine! Of course they aren't trying to run your child's specific formula (just water), or using the same bags that you were using, or trying to do it at 3am in the morning, etc... The craziness we've dealt with this pump is enough to drive anyone INSANE!!! I've heard a lot of people eventually get fed up with this infinity pump and switch back to the kangaroo pump...but I really don't want to do that. I like the fact that this pump is so portable (in a backpack) and small/light weight...but boy is it a pain!! Here's to NO more pump problems (I can hope, right)!?!

1 comment:

Glenda said...

Occasionally, Lilly's Infinity pump will say "no food" and if we try multiple times to get it to work and it continues to beep "no food", we'll just keep "priming" it periodically until we have finished the feed. It takes awhile and you have to stay right there, but it does let you get the feed done. Then ususally the next time we use it, it's just fine. It is a great little pump, size-wise, but has it's quirks!