Tuesday, October 4, 2011
Reagan slept all night last night and then woke this morning not too happy. No smiles. Very serious. Very tense and stiff. But OK. She mellowed a little during the day. She had OT, school, and PT. She actually dozed off toward the end of school and took a little cat nap. She woke and then had PT. She did a good job with her head control while sitting at the bench, but once we went outside to ride the tricycle, the head control was gone! Poor thing. She looked pretty tired and did doze off for a little bit when we came back inside. When she woke this time, she woke startled and fussing a little. We were able to distract her though and get her calm once again. Tonight Mike watched her while I went to play tennis. He said she was a stinker while I was gone. She cried for 30min straight and then was fussy/on edge the rest of the time. She was quiet when I got home but you could tell she was agitated. Mike said while I was gone she kept putting her hands in her mouth and "acting" like she wanted to bite them...but when I was holding her tonight, she was actually trying to bite them!! I definitely think she's fighting off bad days again. Yesterday she woke a little gaggy and I drained a good amount of fluid (some yellow) out of her g-tube. Then last night you could smell that "bad smell" from her, even though she had just gotten a bath! Today her hands/feet have been a little cold and clammy and her sweet demeanor is completely gone. Hopefully we'll make it through and only have a mildly bad stretch again. Please pray that she gets some sleep tonight (we have an early doctors appt that might not happen otherwise) and that she fights off the real bad days and that we see our sweet girl again soon!!!