Thursday, September 15, 2011
The new night nurse came 15min early last night and then I spent the next 3hrs explaining "everything Reagan" to her. Needless to say, I didn't get to bed til after midnight. Reagan slept from about 11:30pm-4:30am...when the pulse ox (that the nurse insists on her wearing at night) went off one too many times and woke her up. It also woke me up so I got up and checked on her. The nurse changed her diaper and then Reagan fell back asleep maybe 15min later. She slept in this morning til right around 10am. We noticed her heart rate had gone up a little (even before waking) and when she woke up, she wasn't the same smiley, happy girl we've had all week. She's been pretty serious all day with the occasional crying meltdown (set off when we use a tone of voice she doesn't like). She has given us some sad, little laughs but you can just tell she's not feeling herself today. Her hands and feet are noticeably cold and a little clammy. I'm not sure what this means for tomorrow. I'm not even sure what this means for tonight. She's very sleepy but she's also very restless...constantly jolting herself awake. I'm hoping maybe we can get by with just a couple mildly "bad days" like this and skip the bad "bad days" altogether. Otherwise our early Saturday morning flight is not going to be a pleasant one...for anybody. Please keep her in your prayers!!!