Monday, September 5, 2011
Oh what a difference a day makes. I knew it was coming but nothing really prepares you for a miserable child. Sleep was OK last night. Reagan woke up only an hour or two after going to sleep but Mike laid down beside her and she was back out in less than 10min. She slept til about 7:15-7:30am. She didn't wake up miserable, but you could tell she wasn't the happy, laughing girl from yesterday. Her nurse had her on the floor and out of no where...she had a couple big throw ups (some of it yellow). I hooked her up to drain her g-tube and immediately a bunch of yellow bile (from her intestines) came out. You could tell she just didn't feel good. I don't know if that's what started the crying or if she had been crying some before that. It wasn't just a fussy cry, it was a screaming piercing cry like she was in pain. She did this off and on for the rest of the day. She'd sleep for short periods of time and then wake up screaming. Scream, kick, and bite for a while (long enough to wear us out) and then fall back to sleep for a bit. Off and on. Off and on. It's been a loooooong day. I'm hoping for some sleep tonight, but I have no clue what to expect. Please say some prayers for our miserable girl.