Wednesday, September 7, 2011
Last night was probably the worst night we've had with Reagan in quite sometime. We put her down to bed and then literally the second we crawled into bed, she woke up and was irate! I'm talking kicking, screaming, flailing...she was hysterical!!! This continued most of the night. She'd fall asleep for short periods of time, only to wake hysterical again. It was another looooong, painful night. And shocking because yesterday afternoon Reagan seemed to be feeling a little better and making a turn (we thought) for the better. Last night proved us wrong. Today she's been a little less fussy. Still having tons of chorea, still very agitated if you lay her down, still very on edge...but not screaming, crying anymore. This morning the nausea also started. It was off and on throughout the day...she was making lots of gaggy faces but never really throwing up. Tonight it has been much worse. She's gagging and retching a lot and she's also had quite a few big, foamy throw-ups. It's painful to watch. She looks miserable. Her hands and feet are icy cold but her body and cheeks are hot and sweaty (and she has a very strong "bad day smell" even though we just gave her a bath). I keep trying to hold her just to let her air out (her back gets so sweaty sitting in her chair), but she's so hard to hold right now, kicking and arching and gagging. I hope she can sleep tonight. When she dozes off, that's the only time she gets any relief from this type of relentless nausea. Please keep her in your prayers. She needs some good days and she needs them now!