Sunday, August 14, 2011

Loving these good days

Reagan slept the whole night through and woke up right around 10am. She was all smiles again! She's been super sweet and precious all day today. Grandma took her outside to swing and then "swimming" in a tiny pool that was way too small for both of them! Reagan seemed to enjoy herself and she got some much needed sun exposure. Grandma keeps warning us that if we don't get her out in the sun more before our trip, she's going to burn like a crisp! I know she doesn't get out much but she does have her Daddy's skin, so I think she'll probably tan very easily. The problem is less with the burning and more with overheating I think. That's something that we notice just taking her outside for short periods of time...those little cheeks get bright red and she becomes drenched in sweat. Temperature regulation is a common problem with kids with mitochondrial disorder. We're in the process of getting a RPCM cooling vest for her. Most kids I know that use a cooling vest have the ones that cool by evaporative cooling. The problem with those is that they leave their clothes wet and they only work in climates with 85% or less humidity. That's just not going to cut it in Houston. We really needed something we could put on her when we're out and about and that we could remove and not have her soaked! This vest cools with removable cooling packs. I'm hoping this one does the trick and I'm pretty excited to try it out. I'll definitely let everyone know how it works. Right now we're just hanging out with our girl and loving these good days!!!


Anonymous said...

I love how glamorous Reagan looks!!

Kristy McCall said...

too cute!