Thursday, August 11, 2011

Giggles and tears

Today has been another weird one for Reagan. She was difficult to get to sleep last night, it wasn't until after midnight that we finally got her to stay down. Mike said he heard her off and on making sounds during the night (I must have been out) but thankfully she kept falling back to sleep. She woke up this morning right around 8am and she was giggly but a little on edge. She was very high maintenance and required your undivided attention to keep from breaking into tears. Finally around 11am the tears started up! She cried off and on (mainly on) for close to 2 hrs and then stopped when her speech therapist got here. I don't know if it was just the change of pace or what. She was still very high maintenance but she held it together and made it all the way through PT without any meltdowns. It wasn't until right around 6pm that she started getting teary eyed again (and super spitty). We worked through it and she's been giggly and precious the rest of the night. I'm still not quite sure what's going on here. Her last real "bad" day was two Sundays ago! Now don't get me was a little shaky. But at this point we're still only seeing slight fussiness and not any of the other usual "bad" day/dysautonomia symptoms (clammy hands/feet, sleeplessness, biting, etc). I'll definitely take it! Now if we could just get an extra long stretch of good days while we're in the Bahamas, we'll be good to go!

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