Wednesday, July 13, 2011
Reagan has been a complete doll today. She woke me up at 6:30am this morning "talking" in her bed. She's been super smiley and very vocal all day today! Today we had a new nurse step in to fill our Wednesday spot (which always seems to be open). She's probably one of the best prospects they've sent out in quite a while. She has a very good attitude and seems to be on top of things, so I hope maybe she'll turn out to be a regular. Reagan couldn't have been better and was "on" all day. She was rolling all over the place, crunching in half (which was driving her OT crazy because she was trying to get her to sit up), & babbling up a storm! It was too cute! I just LOVE good days like these! Today I also got a very disturbing email from an ex-friend of mine. Can you imagine being friends with someone since 3rd grade and then having them dump on you during the most difficult part of your life?? Well, that's what she did. Right around the time that Reagan was diagnosed with infantile spasms, she vanished off the face of this earth. And now I find out it was because I was too much of a downer for her! Yup! My daughter has just been diagnosed with literally the most devastating seizure disorder there is, and I'm not positive enough for my friend! What's crazy, is that through this all, I feel that I really have been able to stay positive. Even when the doctors told us there was no way Reagan would ever be seizure free, I continued to pray, I continued to believe. I have never been one of those "why me" people...even though I'm sure I have the right to. I know Reagan has touched the lives of so many and I trust in God that there is a reason for all of this. But I do tell it like it is. Like for the blog, I recap our days (Reagan's days), for better or worse. I have wondered for a long time what had happened to my friend and how she could possibly desert me like she did...but I guess what I've learned today is that she never was my friend to begin with! I'm just thankful for the friends and family that I do have. Those that have stood by us through all the tough times and those that we've met along the way...thank you...your support means everything to us!!!