Reagan was a turkey last night. I was up and down with her (but mainly up) most of the night. It was a loooong night. She was still very fussy, so that made it even more frustrating. I was waiting for the nurse to get here (counting the hours) so I could give Reagan her medicines and go to sleep. Unfortunately that never happened. After I finished up with her medicines, I got a second wind and started cleaning (thinking I could just rest in the afternoon). An hour or two into my cleaning I heard a noise. I went into the therapy room to check on Reagan and her nurse was missing. Turns out she was in the bathroom throwing up. Apparently she ate raw oysters last night and got food poisoning! She went home minutes later. So much for my nap (or anything else I had planned to do). Thankfully, Reagan was not fussy at all today. She was still very tense, having lots of chorea, trying to bite herself...but no crying. She also had 3 substantial dirty diapers today (very unlike her) and 3 foamy throw ups. I'm hoping that the appearance of nausea/vomiting today means that we are almost done with these bad days. I could sure use some sleep tonight! It's 10:30pm right now and Reagan keeps going from wide awake to asleep. Not sure what that means. Tonight I'm breaking out the big guns. I've been given permission to use a full dose of Ambien. And if that doesn't work, we can still try clonidine (since they are different types of meds). We've GOT to get this girl sleeping again! Continued prayers are appreciated!!
Reagan 3-16-09 (with her all time favorite toy)...smiling even though she was sick.