Thursday, July 29, 2010
Reagan was difficult to get to sleep last night...but when she fell asleep (on her own without meds)...she stayed asleep (thank God)! She woke up this morning in a decent mood. No crying, just lots of movements and very feisty. Lots of chorea...kicking her legs and clawing at her arms. She bit the inside of her cheek while on her tummy (it was bleeding) and then she bit her thumb a couple times too. It's like once she finds it, you just can't keep it out of her mouth! During feeding therapy she wasn't too interested in the applesauce but it was worth the try. Then this afternoon we noticed she felt a little hot and she was running a 100 degree fever. I definitely think she's got something brewing. We always see an increase in fussiness and chorea when she gets sick. I just hope she can clear it and get over whatever it is quickly. Tonight she threw up and then started crying right around bedtime...I caved and gave her the clonidine. Within 15min she was out. Hopefully she'll stay out because the last time we used it she only slept 2hrs. Continued prayers for our little feisty one are definitely appreciated!