Wednesday, July 28, 2010
In the last 24hrs Reagan has been quite the challenge. Last night she slept from 9:30-11:30pm (thanks to clonidine) but then woke screaming crying once again. I got up with her but there was just no soothing her. Finally around 1am she settled down as we watched antiques roadshow. By 2am she was asleep. She woke 4hrs later and has been up ever since...thank goodness our nurse was here today. Reagan didn't cry most of the day but was very tense (so much so her little legs would shake) and having lots of chorea. She was sleepy all day (but wouldn't sleep). Both her vision therapist and her teacher came today but she was not that interested. Then this afternoon she had one little outburst of crying for our nurse and then after she left the crying picked back up. Loud bursts of yelling crying...she was definitely in pain. She's had a little gas, but I can't imagine it's enough to make her this upset. I honestly don't know what's wrong with her. Is she getting sick? What could possibly make her this miserable? When she's miserable, we're miserable. Please keep her in your prayers...we all need them right now.