Friday, July 9, 2010
It's been a rough 24hrs. Needless to say, the clonidine didn't help last night. Reagan cried the entire night. The chorea is out of control. She's clawing at her arms, scratching her face, pulling her hair. I had to lay in bed with her and hold her arms down just so she could get a few winks of sleep. It was an exhausting night and the day hasn't been any better. We had about 15min of quiet this morning before the crying picked back up. It's amazing the endurance this girl has...she can literally cry for days! She's been inconsolable all day. She's been crying so much she's hoarse. We tried Ativan this morning to try to calm her down, but it didn't seem to do anything. We tried tylenol and motrin, nothing. We took her in to the pediatrician and she does have an ear infection in her left ear. How she can get an ear infection while on constant antibiotics is beyond me. So now we're switching over to a different antibiotic Suprax...hopefully that will do the trick...soon. I'm not sure how much more we can take. It's so hard to watch her suffer like this. We feel completely helpless. NOTHING we do seems to help. I just hope that somehow, someway she's able to get some sleep tonight. I know she's beyond tired. Problem is, IF she falls asleep (and that's a big if), she's so hypersensitive she wakes up the second you try to move her. Please say some extra prayers for our sick girl tonight...she really needs them.