Thursday, July 8, 2010
So today's been a weird day for Reagan. Last night she kept waking up crying and then falling back to sleep. She only required me a few times to soothe her, but most of the time she fell back to sleep before I could even get to her room. Needless to say, I don't think either one of us got very much sleep. Then when she woke up this morning she seemed fine. Still coughy and spitty but OK. The chorea has picked up again. Lots of movement and that includes rolling. She's been rolling onto her side all day (both sides but she favors her left). She was vocal again throughout the day but many times she sounded agitated (sort of an in between happy and mad sound). Then around 5pm she started crying and has been crying ever since. Inconsolable crying. I have no clue what is making her this upset. She did have some gas, so maybe it's tummy pains, but it's been a long time since she's had tummy pains that made her cry like this. As time went by she started getting tired but still continued to cry. Around 9pm I tried giving her some clonidine, so far all it's done is make her really sleepy but hasn't stopped her from crying (only now she's crying with her eyes closed). Please say some prayers for her...she's beyond miserable and pathetic right now.