Friday, June 11, 2010
Reagan has been a handful today. She must have woken up on the wrong side of her new bed! She's been fussy and/or crying all day long. She seemed to be OK when she first woke up...she was a little groggy though. Then she fell back asleep for about 20min and that was it...she's been crying ever since. She's had a lot of gas and had a dirty diaper, so maybe that's part of it, but I don't think that's all of it. She slept almost the entire day yesterday, she's very tense, she's got super clammy hands and feet, her eyes are very sensitive to the light again, and she threw up tonight (for the first time in a while). Something's up. We went in this morning and had her labs drawn to check her ammonia levels since she's been sleeping so much, but they only ordered ammonia and a basic metabolic panel, which won't really give any information as to what she's fighting right now. Not a good day. I just hope she's able to settle down and sleep tonight because after that last mishap with the trazodone, it's not really an option anymore. We need to talk to the neurologist about that...right now we don't have anything we can give her to help her sleep. This child is completely resistant to most medications...whether it be sleep, pain, nausea, or seizure medications. It's crazy. She needs her sleep. Please keep her in your prayers. She's had a bad day.