Friday, June 11, 2010

Had a bad day

Reagan has been a handful today. She must have woken up on the wrong side of her new bed! She's been fussy and/or crying all day long. She seemed to be OK when she first woke up...she was a little groggy though. Then she fell back asleep for about 20min and that was it...she's been crying ever since. She's had a lot of gas and had a dirty diaper, so maybe that's part of it, but I don't think that's all of it. She slept almost the entire day yesterday, she's very tense, she's got super clammy hands and feet, her eyes are very sensitive to the light again, and she threw up tonight (for the first time in a while). Something's up. We went in this morning and had her labs drawn to check her ammonia levels since she's been sleeping so much, but they only ordered ammonia and a basic metabolic panel, which won't really give any information as to what she's fighting right now. Not a good day. I just hope she's able to settle down and sleep tonight because after that last mishap with the trazodone, it's not really an option anymore. We need to talk to the neurologist about that...right now we don't have anything we can give her to help her sleep. This child is completely resistant to most medications...whether it be sleep, pain, nausea, or seizure medications. It's crazy. She needs her sleep. Please keep her in your prayers. She's had a bad day.

3 comments:

Missy said...

Has Reagan had a sleep study? Her sleep pattern seems very strange and not getting quality sleep can increase so many of her other symptoms (seizures, immune issues, development, etc.).

I know that we saw so many more issues with Lauren before she started on CPAP.

Just a thought...

Heather said...

Was so hoping the day improved after we talked.No such luck I see.I am sorry and I am praying for a good night all around and a turn around of whatever is going on.Sweet Reagan.she so deserves a break...

Dawson said...

Sorry to hear you guys had such a horrible day.. Spent some quiet time this morning praying for a better one for her this go around..

LOVE the new bed.. Being a guy, i'm not the greatest judge of whats cute.. Buutttt I do have 3 girls which makes me some what of an expert and that is one cute bed!!!

Hang in there