Wednesday, May 26, 2010
I don't know how to explain it except that something seems to be clicking for Reagan. Things finally seem to be coming together. She's doing SO much moving and "trying" to roll but she's also really investigating her hands. Bringing them to midline, grabbing her other hand, putting her hands to her mouth...this is a big deal. This is a kid that was always cortically fisting 6 months ago (not good...it's a sign that something is wrong with the central nervous system). But the first thing we noticed when her seizures stopped, she stopped keeping her hands in fists. She opened them up but still wasn't using them much. It's just lately...just since last week...since all of this increased movement that she's really exploring her hands. All the time. It's amazing! And HUGE progress for her. I'm so excited. It really seems like things are falling into place for her...and quickly. She's making better eye contact, interacting more with people, laughing appropriately, making lots of sounds. So awesome! Today she had her follow-up appt with the immunologist. It was forever before we finally saw the doctor! Our appt was at 9:15am...we didn't see the doctor til noon! She asked how Reagan was doing and I said "GREAT!". I don't think she gets that a lot because she looked pretty shocked. Her response..."Then I don't want to touch her!" She did a quick exam and then quickly went over her test results. The tests basically said that Reagan has very little immunity. This makes sense because she hasn't been vaccinated since 4mo but theoretically she should have higher numbers even without vaccinations. The doctor said the only way to determine if she's capable of initiating a sufficient immune response is to vaccinate her and then check her antibodies afterward to see if her immune system generates antibodies to the vaccine. Problem is...she's seizure free for the first time ever and at this time I am not willing to vaccinate her and risk losing that. So her suggestion is to keep her away from all sick people and kids. Stay away from highly populated areas daycares, schools, even church! She also suggested to keep her away from anyone newly vaccinated with live vaccines (such as chicken pox). If she's exposed to someone with chickenpox or the flu, we're supposed to call her immediately. So that's it. We have to keep her away from any sickies and say lots of prayers that she stays healthy! As of now, she's still great! Super sweet, laughing it up all day long! She really has been a complete joy lately and I pray it continues!