Wednesday, May 26, 2010

Progress

I don't know how to explain it except that something seems to be clicking for Reagan. Things finally seem to be coming together. She's doing SO much moving and "trying" to roll but she's also really investigating her hands. Bringing them to midline, grabbing her other hand, putting her hands to her mouth...this is a big deal. This is a kid that was always cortically fisting 6 months ago (not good...it's a sign that something is wrong with the central nervous system). But the first thing we noticed when her seizures stopped, she stopped keeping her hands in fists. She opened them up but still wasn't using them much. It's just lately...just since last week...since all of this increased movement that she's really exploring her hands. All the time. It's amazing! And HUGE progress for her. I'm so excited. It really seems like things are falling into place for her...and quickly. She's making better eye contact, interacting more with people, laughing appropriately, making lots of sounds. So awesome! Today she had her follow-up appt with the immunologist. It was forever before we finally saw the doctor! Our appt was at 9:15am...we didn't see the doctor til noon! She asked how Reagan was doing and I said "GREAT!". I don't think she gets that a lot because she looked pretty shocked. Her response..."Then I don't want to touch her!" She did a quick exam and then quickly went over her test results. The tests basically said that Reagan has very little immunity. This makes sense because she hasn't been vaccinated since 4mo but theoretically she should have higher numbers even without vaccinations. The doctor said the only way to determine if she's capable of initiating a sufficient immune response is to vaccinate her and then check her antibodies afterward to see if her immune system generates antibodies to the vaccine. Problem is...she's seizure free for the first time ever and at this time I am not willing to vaccinate her and risk losing that. So her suggestion is to keep her away from all sick people and kids. Stay away from highly populated areas daycares, schools, even church! She also suggested to keep her away from anyone newly vaccinated with live vaccines (such as chicken pox). If she's exposed to someone with chickenpox or the flu, we're supposed to call her immediately. So that's it. We have to keep her away from any sickies and say lots of prayers that she stays healthy! As of now, she's still great! Super sweet, laughing it up all day long! She really has been a complete joy lately and I pray it continues!

6 comments:

the Grandma said...

I can't even read this posting without sobbing!!! It's amazing that we cry when our prayers go unanswered and we cry even harder when they are!!! Thank you Father for this glorious gift!!! I love you........the Grandma :)

Missy said...

I am so glad to hear that things have been going well. After so many bad weeks and months, it is so nice to read when things start to turn around and improve.

LOL! We did keep Dr. P for a long time, but in our defense, our 8:30 appointment didn't even begin until 10:30! We sat in the exam room forever just waiting!

Praying the good times continue.

jocalyn said...

I am just thrilled to read this! I'm so happy to hear she's making eye contact too! I'm still so used to Kendall not doing that, that when she does, it freaks me out :)

And how exciting that she's initiating movement on her own! Exciting things lie ahead!! Go Reagan, go!

kmccall said...

Awesome! God is Good!

Dawson said...

great great news!! how awesome!! very glad to hear things are starting to click. and as far as my opinion goes... great decision on staying away from the shots for now. That was the worst decision we ever made for Dawson and wish we could take that one back. Prayers she continues down this road

Gerry said...

I'm glad to hear some good news about her. I hope this continues!