Thursday, May 20, 2010
Finally...we got back the results of Reagan's 23hr EEG. After mulling over the rude words from the epileptology nurse for a couple weeks, I finally decided to call the scheduler in the office and report her rude comments. He apologized profusely and then forwarded my voice mail on to the epileptologist (who also apologized profusely). After getting my message, she immediately read Reagan's EEG and they called me today with the results (3 weeks later). It reads..."There are multiple push button events during drowsiness or wake where the parents report the patient has a brief jerk or head drop. None of these events have a clear electrographic correlate or disruption of the background activity. No clinical or electrographic seizures are recorded." For those who didn't follow...that means NO seizures!!!! Praise God! Seriously. It's a miracle really, because these "twitches" she's been having, they look just like seizures. But they're not! I can't believe it! Thank you God!!!! Thank you, thank you, thank you!!! Reagan had a great day today. She slept well last night and woke up feeling great. Super sweet, talkative, lots of giggles and squeals...we couldn't have asked for more! She had physical therapy this morning and was doing a great job! Her therapist commented on what a great week this has been for her. Then she had feeding therapy this afternoon and ate a good portion of applesauce. Not too fond of the veggie sticks today. Oh well, can't win them all. Grandma finally made it in late this afternoon after multiple flight delays. Reagan was in great spirits and kept Grandma entertained while Mike and I went to Bible study. Reagan had two poops today (one of which she saved for Grandma). That Fletcher's really did the trick yesterday! It's miracle stuff...we will always have it on hand from now on!