Thursday, May 13, 2010

GI follow-up

Last night Reagan slept the whole night through...from 7:45pm to 9:30am! I would have never guessed she'd last the whole night...especially since she fell asleep so early (and all without sleep medication). She woke up this morning in a great mood and has been happy all day today. She had PT this morning and fell asleep in her stander. She was only in it about 5 min before falling asleep. Normally we'd just take her out but we thought she might be able to benefit from the stretching so we just left her in it for a while. She was out cold. She never woke up when I took her out of the stander, took her AFOs off, took her spio off, put her in her bed, and then transferred her to the car for her doctors appt. She didn't wake up til we got to TX Children's for her GI appt at 1:45pm. Her GI doc was so impressed to see how she's put weight back on since getting the gj-tube. Reagan went from 25lbs in Dec to 31lbs now! She's gained back everything she lost and she looks so healthy now. I spoke to her doctor about wanting to take her off Miralax (I've read some scary stuff recently about kids absorbing Miralax and then having neurologic side effects. We're going to try something called fruit-eze. It's all natural, made from prunes, raisins, dates, and prune juice. It's very thick and sticky stuff but you can blend it with water and put it through a g-tube. The nice thing is that it is supposed to not only help with consistency but regularity. We're also going to add a probiotic. I've heard that this can also help with constipation but I'm hoping it will help her immune system as well (especially since the amoxicillin she's been on has probably killed off a lot of the "good bacteria" in her system). Hopefully these will all be good changes for her. Please continue to keep her in your prayers...we're all hoping for another good night's sleep tonight!!!

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