Friday, April 16, 2010
Things are still off around here. Reagan woke up crying and ended up spending most of the night in our bed. This morning she was up early crying again. She had a small throw up first thing and then two big ones tonight. I'm clueless as to what is going on with her. I don't know if the nausea is just picking back up or if the hypothetical sinus drainage down her throat is making her choke and throw up. She's still super stuffy and has been wiping at her nose all day. She also had a low grade temp today, but she's had that off and on for weeks. It's just so frustrating. Why is it that Reagan continues to throw up like this even with an empty stomach? Why is it that none of the doctors seem to care? It's the same way we felt with the seizures...it was like no one even cared about stopping them but us! We really thought we were in good hands with this mitochondrial doctor, but she has been less than interested in Reagan's case. I guess it's like Mike said...for those kids that the doctors think have a chance, a shot at living a semi-normal life...they actually DO care. Unfortunately that has not been our experience at all. Other than her pediatrician, I don't know if any of her doctors really care about helping her. That's a frustrating feeling. A helpless feeling as a parent. Please keep her in your prayers...that this is only sinuses and that she's feeling better in no time! Tomorrow would be nice.