Tuesday, October 13, 2009
Last night Reagan ended up in our bed a little earlier than I would have hoped. That also meant she woke up for the day earlier around 5:15am. The good thing, she woke in a great mood and she's been an absolute angel all day. Very easy going and sweet, quite the change from yesterday's feisty girl. I'm sure her therapist was thrilled to see her so happy (considering the nonstop crying session she had last week)...she was certainly all smiles today for aquatic therapy. Then we came home and our new helper worked with her on some stretching and vision exercises. So far, so good. She's certainly more motivated than our previous helpers...she does things without having to be told, which is good because I'm not always the best at delegating...especially when it comes to Reagan. This afternoon was filled with headaches. Nothing to do with Reagan, everything to do with her neurologist's office. Her neurologist is out of town...AGAIN. And as it turns out the entire office is out all week! So I was wondering why I never heard from the EEG scheduler...he's out too. According to the secretary, they are operating on a skeleton crew this week and apparently Reagan's doctor never made note of the fact he wanted an EEG scheduled so there's nothing we can do but wait for him to come back. I'm beyond irritated! Then there was also tons of confusion over her Topomax prescription...it was out of refills and someone from the office kept refusing the requests by the pharmacy to refill it. After talking with the pharmacy, the neuro's secretary, the pharmacy, the secretary...finally I was assured it was straight. I went to pick it up and 30min later as I was leaving with the goods and glanced down to see that they had given me Topomirate...the generic equivalent to Topomax. Well, everyone that deals with seizures knows that you don't just switch from brand name to generic, so back I went. They had to give me loaner pills until they could get this whole "brand name only" thing verified by a doctor. Ugh. So frustrating. Did I mention I was frustrated? But then I come home to the most precious girl in the whole world! She was so cute tonight! Smiling away and giggling for no particular reason. Just a doll. I hope that little doll sleeps well tonight...in her own bed!!!