Tuesday, October 27, 2009
Reagan slept well again last night. She was only in bed for a few minutes last night when she woke crying with a huge dirty diaper. I'm sure that helped her to sleep better. It had been 5+ days since she had gone, so I was beginning to worry. This morning she had aquatic therapy. It's a little cool here (for Houston anyway) but the pool is indoors and they keep it nice and steamy and the water is warm. She was actually very smiley and she seemed to enjoy it. Then we changed her, bundled her up, and headed to Feldenkrais therapy. She was relaxed after her swim in the pool and was very cooperative with all the stretches and movements her practitioner was doing. But something is not quite right. It's like she's a different child...you would never peg her for the super chatty and animated girl from only a week ago. I'm not sure what it is. Maybe it's the Botox (but I wouldn't think that would affect her moods or personality). Maybe it's the Banzel. We've got an appt tomorrow at Texas Children's for PT, maybe I'll talk to neurology to see if they could order some blood work just to check her out. You know I'm getting worried if I'm asking for a blood draw. It's just strange. She's SO different. Staring off into space a lot with a blank stare. It's like she feels sick but she's not displaying any symptoms (no fever, no runny nose, no coughing)...but she's still not wanting to eat. She's giving me such a hard time with her bottles. Today (all day) I only got a measily 12oz of formula in her...but Mike got another 2.5oz of pedialyte/water in her tonight and she had another 1.5oz of water mixed in with some oatmeal, so I guess she'll be OK. I really worry about her low fluid intake and how that's going to affect her bodily functions overall. She usually only takes in 16-18oz a day (which is already way below the recommended 32oz for her age/wt) but when she gets really low like this...it concerns me. Please keep her in your prayers.