What a night and what a day! Definitely not the restful weekend I was hoping for. Reagan was up at 4am but she wasn't her usual perky self. She was very moany and groany. It was two hours of this before she finally settled down and was able to fall back asleep. Unfortunately it didn't last long. She woke up for good at 7:30am. And it was clear that something was just not right with her. She's been this way the entire day. Moaning and crying off and on all day long. It could be one of many things, and we have no way of pinpointing which. She didn't get much sleep last night, so maybe she's just over tired. Every time she would fall asleep today it was extremely short lived, usually waking back up only minutes later with a seizure. It was heartbreaking. She was so extremely tired, but she just couldn't stay asleep. Maybe the Banzel increase is causing this strange behavior. It does seem like the Banzel has had more of an awakening effect on her, especially considering most seizure meds do exactly the opposite. She also seems to be having way more seizures in her sleep. Mike thinks that she's just not getting to a deep enough sleep and that's why she's still getting hit by seizures. Who knows. Maybe she's getting sick. We have no way of knowing if she's experiencing aches and pains. She's still teething (with the occasional low grade fever), so maybe her gums are hurting. She's also been 5 days without a bowel movement, that could be causing problems as well. Who knows, it could be any one of these or a combination of them all. No clue. All I know is that I'm dreading tonight. I hate to say it, but I have little hope that she's going to sleep tonight. I hope I'm wrong. We all really need some sleep. Please say a few extra prayers for this little one!
So sad...just not herself today.
This one is from last night, before she started feeling crummy. I really like the chest straps on this special tomato sitter...way more supportive than the tumble forms chair.