Saturday, September 5, 2009
So Reagan has been on a streak of sorts. She's had some really great days lately and although today she was not as talkative and happy as she's been, it was still a good day. She continues to sleep great, which is such a relief considering that we've been lowering the dose of the medicine that helps her sleep (since it's not helping her seizures). It's going to be tricky to see how low we can go before it starts affecting her sleep. Mike's parents are in town for labor day weekend and this is probably the most content they've ever seen Reagan. Today was the first day in a week that we've even heard a whine out of her (other than after a seizure). These new seizures she's having, what her doctor called myotonic, they really upset her. She stiffens up and then moans and fusses and it takes a while for her to settle down after them. I don't like them one bit. I don't know if maybe her seizures are morphing into this new type or if she'll just have these in addition to the other ones she has. Ugh. Have I mentioned that I hate seizures? The thing is, I'd almost prefer them changing into a new type because we certainly haven't been successful in treating the spasms. Speaking of, we'll start up with the Banzel next week, so please keep her in your prayers. I'm hoping we can keep this good mood streak going. Reagan fussed a little tonight but she was working on a dirty diaper and I'll take a little fuss any day to screaming and crying! But seriously, she's gone an entire week without any fuss...zero whine! It's amazing really. And I've enjoyed every minute of it! Thank you for keeping her in your prayers.