Monday, September 28, 2009

Nighttime tummy pains and throw up

Reagan slept like a log last night...and so did we! It was sooooooo nice, she didn't wake up til 8:30am. I'm actually amazed that she can make it through a whole night the way she sleeps. I'm was her watching tonight, taking a late nap, and she was twitching and moving her arms almost nonstop. Doesn't sound like a restful way to sleep. Poor thing. I don't really know how she can function at all, when you consider how many seizures wrack her body every day, all day long. It's brutal. I finally spoke with her long lost neurologist this afternoon. He said that we need to increase the Banzel a little more before we can rule it out completely. He agreed to let us raise it more quickly but if we see more seizures we're calling it quits. So this is Banzel's last chance. Please keep this in your prayers. She certainly needs some relief from these nasty things. Reagan did hold her own today with back to back to back therapies. She was so good, she put up with all kinds of stretches and manipulations without so much as a peep. Tonight didn't go as smoothly. We had a little incident. A throw up incident. I think it was just because she had a full tummy and was laying on Mike tummy down. Maybe it's the new reflux med. Right now she's only on an am dose, maybe she needs a pm dose of it? I don't know. All I know is I do not want to go back to daily throw ups. Yuck! She also had a bout of tummy pains this evening followed by a dirty diaper right before she fell asleep. She was still fussing as she konked out. She had been doing so well the last month or so but it seems the tummy pains are coming back and getting more and more frequent. Not good. Hopefully she'll be able to sleep tonight. She's got aquatic therapy tomorrow morning so she needs her rest! Below are a couple pictures of her therapy room (one half of it anyway). The pictures don't really do it justice. There's a lot of work that still needs to get done...we're changing out all of the electrical plugs and putting in a new ceiling fan (Mike is), we have to hang the paper lanterns, hang mirrors, build a therapy table and ramp, add roman shades...the list goes on and on! It's a work in progress.


Yes, Rody has a rocker that his little feet fit in. I had never seen him in a rocker but when my mom bought it, she of course had to get the rocker too! (Notice the orange Rody ball in the next picture! I had never seen that either!)

Reagan being entertained by Elmo. She LOVES this thing!

8 comments:

Heather said...

Her room looks darling!!!I love the painting and is that Rody on a rocker???Ours doesn't have a rocker.Loved catching up with you today.Kiss Reagan for me please and as always ,our prayers continue.

Liz said...

What a beautiful room! What a neat place you've created for her therapies. And I'm with Heather.....I didn't know Rody had a rocker......but then again Maddie can barely balance on him flat, the rocker would be quite a challenge.

And again, I love the room. Those colors are so vibrant. Your mom did a fabulous job on the dots.

Sorry about the returning tummy pains and continuing seizures. She needs a break.

Jackson's Blog said...

Wow...for someone who knows the before and after...you and your mom did good! It looks like the perfect therapy room. I love the circles and colors.

Praying this Banzel increase will rid those seizures for good!

Shonda said...

The room looks GREAT! I am sure Reagan and Elmo will enjoy the time they share in the therapy room. Reagan is always in my prayers. Those darn seizures need to just go away already.

Kristine said...

LOVE her therapy room!! What a cheery space for Reagan to hang out and work in. :)

The polka dots look awesome!

Debbie said...

LOVE the room...it looks like such a HAPPY place to be...would love to have a room like that for Hudson!

Rhea said...

Love the therapy room - thanks for posting pictures!!!

Holly said...

Love the new room! It's wonderful. Reagan (and you) will have hours of fun in there, for sure.