The sleep issues continue. I don't know if it's the increased pm dose of Banzel or what but Reagan hasn't been sleeping worth a darn the last couple nights. Last night she woke up crying, we put her in our bed for a while where she tossed and turned, and finally at 5:45am I got up with her for good. The thing is, she's not sleeping much during the day either. Just a little nap or two, certainly not enough to make up for her being up all night! She's actually been quite wired today, especially tonight. When Mike got home she was squealing and talking up a storm to him. There's no doubt in my mind she was saying Dadee and Dada to him. No doubt. Giggling, squealing, and babbling...she went on like this for more than an hour. It was so funny! I had to break out the video camera to document it. It's not often that we see her this way. I'm not sure what it was, but she was down right giddy! It was really cracking us up! (See video below...make sure you pause the blog music.) I spoke to the neurology nurse today about the possibility that the Banzel is affecting her sleep and she mentioned that they really don't know a lot about this medication but they don't think that's one of the side effects. Their suggestion was to just lower the dose back down to 1/4 tab 2x a day to see if it helped. I think I'm going to wait one more night before trying that. Just to see if history repeats itself. If so, no worries, I'll lower it. I'm hoping maybe she'll just get used to it. We'll see. Reagan had physical therapy this morning (where we talked about another round Botox and serial casting), she had her blood drawn (for a test to look for mitochondrial DNA deletions and mutations in the blood), then she had her Feldenkrais lesson (and fell asleep toward the end, she was so relaxed). She's had a busy day and then a crazy hyperactive night, maybe she'll actually get some sleep tonight?!?!? Oh I hope so!