Wednesday, August 26, 2009
It's strange but today has almost been a complete carbon copy of yesterday. Reagan's sleep last night was exactly the same, she slept well and woke up once but fell back asleep in our bed no problem. Then she woke up and had two dirty diapers immediately and then two more during the day (that's right, 4 again, must be a stomach virus of some sort), and in spite of it all she's been in a great mood all day today. Seizures were pretty rough this morning. Tons of twitches and spasms...for a while she was seriously having at least one a second! That warranted a call in to the neurologist, of course I just left a message and got a call back from the nurse but never heard from him. Thankfully they eased up a little as the day went on. She's still having way too many of those nasty myo-tonics. The worst part about those is the dazed look and groaning noises she makes as she's comes out of it. I don't like it at all. She's now officially off of Keppra. Maybe we'll see some improvement from that change over the next few days. I hope so. Please keep Reagan in your prayers, as we continue to adjust her medications (and probably add a new one) over the next couple weeks.