Friday, July 17, 2009
Sleep at last! Last night was glorious! Reagan fell asleep in her happy mellow mood and didn't wake up until 6am! It was GREAT! At 7am we woke Grandma and while she was up and making coffee, Reagan and I fell back asleep in her bed. I was so tired, I could have slept all day, but that never happens. Not a lot going on today, this whole week has been off with all the moving chaos. Reagan missed out on most of her therapies this week, although I doubt there was much missing done on her part. They did finally deliver her Leckey Bath Chair today. We've been using an infant seat in the bath for quite sometime but Reagan has SO outgrown it. Hopefully this new chair will make bath time easier for everyone. We were able to use some of the excess funding we had gotten for her Squiggles chair to pay for the bath seat. The seating company has been holding that funding for us, but it has been such a fiasco dealing with them, everything moves at a snail's pace. It's too bad we can't use that funding toward paying for therapies, considering all of the obstacles we've faced this year with insurance. Please keep Reagan in your prayers this weekend as we go up once again on the Clobazam. I'm really hoping to see some seizure improvement, because she's been having some tough ones lately. She's such a trouper, with everything she goes through, she keeps us all going with that smile.