Tuesday, June 16, 2009

A long EEG

I wish I could say everything went as smoothly today as it did yesterday. None of us slept more than a wink last night. It was hot and uncomfortable and Reagan kept us up all night. We checked out of our room and headed over to the hospital shortly after 9. In the few short seconds we were outside...boy was it nice. So cool and comfortable, a polar opposite to Houston's hot, humid weather right now. We first went to admitting, which didn't take too terribly long and then they escorted us up to the EEG dept. We waited there for quite a while and when Reagan was already getting a little antsy by the time we were called back. They wrapped her up like a mummy and she HATED it! Cried and cried. I had to take a picture because she looked so cute and so pathetic at the same time. It seemed to take forever (they do go through the trouble of braiding her hair to keep it from getting too gunked up) and finally Reagan wore herself out with the crying and fell asleep at the very end. Then we were taken up to our room for the video EEG...which was already occupied by another family. To clarify, there are two rooms with a half wall in between them that leads to a shared bathroom. Some privacy, but not nearly enough for our super sensitive princess. Luckily they cleared out in the afternoon and now we're in here alone. Reagan has been fairly irritable today...which is double tough when you can't really move around at all with her. I think it's a combination of all the junk on her head and not taking a decent nap all day. Every time she falls asleep on us and we try to make the switch to the crib, she wakes up crying. She's so tired, you can just tell, those eyes have had a hard time staying open. We're tired too. I really don't know how we're going to do it tonight. They say that one of us has to stay awake 24/7, but we are both so sleep deprived I don't know how we'll manage that. I guess we'll probably try to take shifts, with one of us sleeping on the empty bed next door (they didn't say we could do that but we're hoping they'll let us) and the other in with Reagan drinking coffee. It's going to be a long one (but aren't they all)! Seizures have been fairly mild today...it's been 9hrs and we still have the same log sheet (although we only have 2 spaces left). I'm interested in seeing what they have to say about the results of the EEG on Thursday. The highlight of our day today was when we ordered pizza tonight! It was a place recommended by Meghan after all the time she spent here with Jackson in the hospital and it was awesome! My first taste of Chicago style deep dish pizza and it was so yummy but so rich. I'm stuffed. It's been a stressful day and it's only going to get worse tonight and tomorrow. She has the PET scan tomorrow which requires sedation, which is always a little worrisome. Not to mention the fact that she can't have anything to eat after 8am. It's not like she typically gets "hungry" but her bottle is what we use to soothe her when she gets fussy. Should be an interesting day tomorrow. Please continue to keep her in your prayers!



13 comments:

Karen Owens said...

Oh my goodness -- that's on crazy mummy wrap. Poor thing! Thinking of you all today!

the Grandma said...

Okay....now the Grandma is officially freaking out! My baby looks soooo distressed! I am praying VERY HARD that all of this is worth it and the doctors will give us some wonderful news!
I love you all.....the Grandma

Keri said...

Lots of prayers for all 3 of you today! Thanks for the update! Hang in there tonight and use toothpicks to keep your eyes open whenever necessary! I thank God that both of you are there to help each other with Reagan. Praying that the test results show something that the docs can use to help Reagan overcome this! God has a plan...
Love y'all!
Keri

Jackson's Blog said...

Hang in there! Today will probably be the longest day, tomorrow should go faster since you have the PET. I hope and pray that answers come for Reagan this week! A new direction!

Krissy said...

The poor thing! Prayers going out to you all!

jocalyn said...

Oh my gosh! That looks horrible. Big prayers for you guys. Keep us updated if you can...thinking of you all...

Heather said...

You will manage.I know you will.Prayers that time will pass quickly and you all will emerge unscathed ... might be Mike I'm worried about!!Kidding aside,I pray for sweet Reagan and that she will weather these days with minimal discomfort and yield answers and a plan of action.Love you all.

Sophie's Story by Elaine said...

Going into the overnight EEG already exhausted...UGH!!!

I hope tonight passes quickly. I guess it is already 2:15am your time so I hope things are going smoothly. That is nice that you have the other bed to take turns sleeping in.

Like Meghan said...the EEG is the longest part. The PET scan should go fairly quickly and you will have the rest of the day tomorrow to hopefully relax and get some sleep. Just don't try to cross the border with Reagan. We did with Sophie and had quite the experience trying to get back in the US since the detectors picked up the radiation on Sophie!!!

Jamie said...

GEE WIZ! they wrapped her! I have never seen that before! Oh mama...just KNOW that this NON painfull test will give answers to you and to Reagan!
...And grandma quit making me cry!
Its already 9am my CT time...so hopefully you are almost done? What is the time zone there?? LOL

blogzilly said...

Yeah I was going to say DON'T go to Windsor, the radiological stuff is crazy on border crossings. Just go check into a nice hotel WITH AIR CONDITIONING and spend the day relaxing, letting Re sleep and you guys sleep too. Order some room service or something. Or more of that pizza.

Anyway, hope the PET goes well, which is probably gonna be staring VERY soon.

Tiffany Lockette said...

Poor baby. She and you guys been put through it. I wish there was something I could do to help. I will continue to pray for you guys. Hang in there.

Kristen said...

I am praying for all three of you!!! I really hope you get some answers out of this. Love you all.

Kristen

Marc said...

Hang in there - I am sure the hardest part is over. Mira hates the EEG process in general, so I can't imagine what she do when wrapped up in a mummy outfit. My thoughts and prayers are with you!