Don't get me wrong (I don't want to worry anyone)...today was not a bad day. It just wasn't what we'd hoped for. Today marks one year. A full year since Reagan's seizures began. I certainly did not think we would still be here, still battling them on a daily basis a year later. Just thinking back to that day when we were in the hospital for what Mike thought was something I'd dreamed up (oh how I wish that had been the case)...and they told us Reagan had Infantile Spasms. It still makes me sick to think about it. They told us the worst case scenario...and it was BAD. And we've experienced a lot of the bad, but we've also experienced the good. Through this all we've met some wonderful, caring people and become better parents...we've become better people. I can't say I wouldn't change it because I would...in a heartbeat. But I guess that's why He doesn't let us choose. Today Reagan also turned 17 months old. She's getting to be such a big girl. Seriously...she's really getting heavy. Since starting the Ketogenic diet she's really filled out. She's not that skinny little baby she used to be. That's one area where the seating system will help out. It's so hard for me to carry her around everywhere, all day long. Her therapists came over today to look at the demo and they both agreed that it looks like the best option for her. So now all we have to do it order it. I'm hoping the new seating company we're going through will be able to work with our insurance a little more and lower our out of pocket expenses. We'll see. As for the increase on her medication...I haven't really noticed any difference just yet but last night was the first increased dosage. I'm certainly glad that I haven't seen an increase in her seizures, but I'm sure hoping we'll begin to see a decrease! Please continue to keep her in your prayers as she goes through this transition!!
Here Reagan is in the demo squiggles seat. It's blue but we would be ordering a pink one for her!