Monday, August 11, 2008
Last night Reagan was so funny! She was in such a good mood and so wide awake and interactive we couldn't get her to sleep. We finally just had to lay her down in her swing sometime after midnight. She slept in a little and woke up just as happy as could be. I think we've decided to do the HBOT in spite of our appt today. We got to the HBOT place this morning and the doctor who was supposed to do the evaluation was not there. We ended up having to go over to her actual office (another 10miles away), which was pretty pointless. She just gave Reagan the once over and said OK. I guess it's just a formality and they have to have a doctor's approval, but really. The place is just not very well run and the guy that is in charge is a little harebrained and disorganized but I think we're still going to give it a try. I do want to check with her doctors ahead of time, but I'm thinking maybe in the next couple weeks we'll get her started on a 10 session treatment. Reagan was so wonderful again today. Two days in a row. Such a sweetie. And super talkative today. She even slept for most of the drive home so that worked out great. I did up her morning dose today to 875mg...by Wednesday she'll be getting that twice a day. So far so good. She's still having quite a few seizures in the morning and scattered ones throughout the day, but they are significantly less than when we first started this medication. Hopefully we'll begin to see less with this new increase. Please keep her in your prayers!!