Friday, August 8, 2008

And we're off...

Today has been one of those days. The last few days we have seen some significant improvements seizurewise and today it's almost like we're back to square one. OK... not that bad but not good either. I feel like I have been given a glimpse into what the future will be like when the seizures are gone...when seizures no longer dictate every aspect of our life...and I like it. It was wonderful! They weren't gone by any means, but you have to understand where we were coming from. Reagan was having HUNDREDS (we're talking 5-6 hundred at her worst) a day. They have decreased since starting the vigabatrin, but the last few days the number was significantly down. Significantly. And you could just tell she felt better! She was more interactive and happy, even her therapist noticed big improvements during her therapy sessions this week. I'm trying to not get discouraged. We've seen improvement which is amazing. Up until this point not a single medication we've tried has helped her in the slightest. I so want to see her rid of these seizures. Her poor little body needs a break! So maybe the next tweak will do it...or the one after that? I remain faithful that she will get that break and the opportunity to thrive in seizure freedom! Now...we're off to Austin (or when Mike gets off work anyway). Please keep us in your prayers as we take to the roads and I will try to update the blog while we're away!


New shoes...aren't they cute?!?! These soft leather shoes are perfect for Reagan since she's always pointing her toes most shoes don't stay on her feet...these fit almost like socks so they stay on very well. She's got a pair of pink flower ones too!!


4 comments:

Jennifer said...

Can't wait to see you tomorrow. I hope you have an easy trip to Austin!

Heather said...

If today was one of "those" days then you know what tomorrow means in the "every other day"world of Reagan?String a few of those along ,alright little Reagan?I pray that the increase is only her body adjusting and that by the end of the weekend you'll see marked improvement.We remain faithful right along with you that she'll catch that break before too much longer.

Dawson said...

so glad to read of the progress being made. Our hearts have been filled with joy about the last couple of days and because of the seizure reduction you are starting to see. I think that days even 100 times greater than that are on the horizon for you guys.

Anonymous said...

I love the shoes! Adorable!
Monica