We're having a bit of unexpected drama. We're going through our insurance to get Reagan's stander (and feeding seat) since the Texas ECI programs don't have the funding for those sorts of things. Our PT was not expecting any complications getting it covered since most insurances have no problem covering standers because the benefits are well documented (while most insurances refuse to cover the feeding seats but we thought we would look into it just in case). There's a picture of it below...it's the Jenx Monkey stander. So the therapist contacted the company that sells the equipment and they checked into what our insurance was willing to cover and they found out the opposite...they didn't mind covering a feeding chair but were refusing to cover the stander. When I got home from therapy (another wonderful PT session) I tried calling our insurance and spoke to an extremely RUDE woman that wouldn't listen to a word I was saying. We kept going back and forth and finally I just hung up on her because she was IMPOSSIBLE. It's probably best if me and my temper stay out of these things. I'm hoping her therapist can figure it out. I just can't imagine our insurance (which has always been absolutely wonderful) not covering something that most insurances cover. We'll see. Reagan's seizures have been rough today. She's been having a lot of seizures after waking lately but I had no idea of real numbers, so I thought I would count them. Big mistake! She had 200 spasms in 1hr. They finally tapered off after that, thank God. But she did have another bout of them in the afternoon (I didn't even bother counting those). I spoke with the nurse practitioner and she wants us to wait until Friday and check her beta-hydroxybutyrate levels before making any more changes to the diet (lowering it to a 2:1 ratio). I don't know...it's going to be a long week if this continues. Please keep her in your prayers!