Wednesday, June 11, 2008
I think the teething has started back up again. Reagan has been a tiger today. She's been taking small 10-15min naps and is very fussy. She had OT this afternoon and let's just say it didn't go well. She seemed fine before we left the house, but as soon as I put her in the car she started crying and cried the whole drive to therapy and then proceeded to cry through the majority of the session. I fed her a bottle towards the end and after she finished it she had ~10min where she was as happy as can be. She was smiley and talkative and even held a toy for longer than she's ever held anything (of course I think it was at just the right angle in her hand so she couldn't shake it off, but whatever). Then I put her in the car and she was quiet for about half of the drive home and then started back up again. She did take a loooooooooong nap from 4-7pm, then woke up to a ton of nasty seizures and the same lousy attitude. It looks like she's got 4 teeth on the top that are trying to break through. I'm afraid we're in for more miserable days ahead. We're still waiting to see some sort of response to the change in the diet. Nothing just yet, but the ketone strips are still testing very high so it may just take a little more time. Tomorrow Reagan has PT in the morning then an appt with the new neurologist in the afternoon. I'm anxious to see how that goes. I hope she's in a better mood tomorrow.