Monday, June 23, 2008
Reagan decided to wake up at 5am this morning (very fussy and having lots of seizures) and didn't go back down until 7am. We've all been a little wiped today. She had occupational therapy this afternoon and it went relatively well (considering). She was asleep for the first part, so the stretching was painless for everyone involved, but then she woke up and was a little floppy for the remainder of the session. The seizures have been exceptionally bad today, even the clonazepam didn't seem to make a dent in them. I'm not sure if it's just her adjusting to the changes we made to the diet or what, but it's quite aggravating. Could be teething...she has been super whiny today...who knows. All I know is that we NEED to see some improvement on this diet. She CAN'T continue having this many seizures. She just can't. Please keep this in your prayers!