Sunday, June 29, 2008
Reagan has been in a much better mood today than yesterday (thank goodness because she was a challenge yesterday). She still sounds "stuffy" but I guess she must be feeling a little better. She wore her AFOs for a little longer today...3hrs...we'll increase it to 4 tomorrow. They don't seem to bother her too much. Her ankles and heels are a little red after taking them off, but they don't stay that way long enough to be worried. She's still having A LOT of seizures, but luckily no more tonics. The clonazepam doesn't seem to be doing anything anymore...even with the recent increase. I think it's time to move on to something else. I'm fairly certain that it's responsible for her being so "floppy" lately...I'll be glad to see her off this medication and more alert again. Hopefully we'll hear from her new neurologist sometime tomorrow to discuss what to do now (that the diet is obviously not working for her). I can't stand watching her have this many seizures so I welcome the chance at trying something new. I'm also expecting the dietitian to call to let us know what we need to do to decrease the ratio of the diet down to 2:1. Please keep Reagan in your prayers and pray for guidance for her doctor in choosing which direction to go next in her treatment.