Sunday, April 27, 2008

Back to church

Reagan took a long nap yesterday afternoon (she's taking one now as I type) that may have messed up her schedule a little. She was up a lot last night and then finally slept from 5-8am. Mike's parents were in town and stopped by to visit this morning and saw an extremely happy and smiley Reagan. Afterwards we made our first trip to church since starting ACTH. Reagan made it through a little more than half of the service and then grew antsy just as the pastor was making his point. We tried to listen to the rest of the service from the entry way, but it's hard to concentrate. Oh well, I can go back and watch it via internet later this week. Reagan's actually had a pretty good weekend (temperament wise). The amount of seizures she's having is still really bothering me and I'm going to put in a call tomorrow morning to talk with the nurse practitioner about it. I just wish she was starting the diet sooner. I know there are no guarantees it will stop the seizures, but I really think this is something that she is going to respond to. I just hope we can get her to eat enough! I've cut back her solid foods from 4x a day to 1-2x a day and it hasn't affected her intake of formula at all. She's actually been drinking less formula than before. I don't know what more we can do! She's so stubborn (I don't know where she got that from), if she doesn't want it, you can't make her drink it!!

Kisses from Bear!

1 comment:

Danielle said... there a cuter baby girl out there! I don't think so! Love the pix!

Just wanted to let you know you guys are in our thoughts & prayers often!