Monday, September 10, 2007

More clusters

On Sept 10th Reagan had her 2nd cluster; she had another EEG the following day and the results were the same as before- abnormal with hypsarrythmia. On Sept 16th she had her 3rd cluster and was started on a low dose of Zonegran a few days later. While on the Zonegran, she also went through a trial of vitamin B6, which didn't seem to help. Reagan had a lumbar puncture on October 15th to check for neurotransmitter diseases (all came back negative) and had her 4th cluster the following day. She had another EEG on October 15th, which still showed hypsarrythmia during sleep, but it did show a more normalized pattern while she was awake. At this time Reagan was having anywhere from 10-30 individual startles/spasms a day but they were usually in response to a stimulus (like a loud noise, a burp, or if you got in her face and scared her), we never really thought of them as seizures, but according to her epileptologist, they were. So we started increasing her Zonegran to see if it would get rid of the individual seizures, and although we didn't see any more clusters, it didn't change the amount of individual startles she was having.

In the video the individual spasm is very subtle and occurs about 21sec into the clip.

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