Thursday, August 30, 2007

Hospital Stay

Since I was the only one to actually witness the first cluster, my husband still thought in the back of his head maybe I was just exaggerating. We finally agreed to the testing and went in for a few days while they ran bloodwork (including a genetic microarray), MRI, EEG, etc...
Everything came back normal except she showed a slight delay in myelination in her MRI but her EEG came back very abnormal with traces of hypsarrhythmia. The neurologists at the hospital told us hysparrhythmia=infantile spasms and after reading up on it, we were shattered. They wanted to start her on ACTH right then, but instead they started her on Zonegran until we could meet with the epileptologist the following week. We were sent home completely devastated!

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