Tuesday, May 16, 2017

Sleeping and holding

Reagan slept well last night and then just kept sleeping today...the ENTIRE day! Her nurse finally moved her out of bed this morning to help her pee (she's holding) but she never even attempted to wake up! She just been snoozing the day away! She must need it though. She did finally wake up at 9pm tonight. She was sweet and content but still very yawny and she only stayed awake about an hour or so before falling right back to sleep. Sweet girl. She never peed on her own today, only with the help of warm water, but at least we didn't have to cath her. It's strange to see her holding on a day when she's so relaxed (and sleeping) all day. Not sure what causes her to hold the way she does, but just glad she went without having to be cathed! Hoping for a happy awake girl tomorrow!

Monday, May 15, 2017

Calm Monday

Reagan was very laid back and calm today. She had speech this morning and did OK with that. She did respond to a question on what she wanted to work on, but overall wasn't super interactive. Just very serious and quiet today. She was a little spitty this afternoon/tonight and kept trying to put her hand down her throat resulting in her choking herself. She settled down a little tonight and was so sweet and snuggly, I just wanted to eat her right up!! She eventually dozed off on my lap. Sweet girl.


Sunday, May 14, 2017

Happy Mother's Day

It's been a nice laid back mother's day. Ryan was back in our bed last night, so that was not ideal. Reagan slept well and woke up happy today. She's been a little sensitive in her eyes today, but otherwise good. Mike cooked breakfast and then cleaned the kitchen (best present ever). Then this afternoon Mike and Ryan put together my new grill (Mike does all of the grilling, but I'm the one that likes to eat it) and then they went swimming. Reagan and I sat outside and watched them. It was a little warmer today, so we didn't last long. My girl was getting flushed and I was hot myself. All in all, everyone had a great day. Hanging out with the fam, what more could I ask for! Great day!


Saturday, May 13, 2017

Swimming Saturday

Guess who ended up in our bed again last night? Ryan! What the heck? This sleeping in mom/dad's bed is for the birds! Ever since he got sick he's been pulling that. Not sure how to break that bad habit. Reagan slept well but was up and vocal by 7:30am. She was happy, so that was great. She's been a lot more laid back today. Always trying to escape from that restraint. Sweet girl! I can't believe she's had to wear it the entire week. Her finger is finally healing, but she definitely did a number on it. Hopefully another day or so and we can turn her loose. I just don't want her re-injuring it right now while the skin is still thin. Ryan got a much needed haircut this morning and then went swimming this afternoon with Grandpa. Reagan and I sat outside and watched them. The pool is warming up but is not quite warm enough for my girl just yet. It's still very cold when you first get in, although Ryan doesn't seem to care. He's been in it every single day. He's quite the fish.




Friday, May 12, 2017

Vocal and tense

Reagan was very tense/vocal today. She had a dental appt this morning and we weren't sure if we were going to make it there without tears. She was very vocal, I think because she's still demanding constant attention (like she was last night). We made it there in once piece and got her out and into the office. She was actually very well behaved the whole time we were there. She did fine for the dental exam, got a little annoyed with the dentist's singing (she sang twinkle twinkle as she counted her teeth), but she was fine. On the ride home her nurse sat in the back with her and she seemed a lot more calm. She actually fell asleep before we got home, but woke up as soon as I carried her upstairs. No therapies today. No school. Which was fine since she was still very vocal and on edge the rest of the afternoon. Very whiney/fussy, but no actual tears. Demanding attention. She did not want to sit in her tomato chair at all today. Definitely preferred the mat. Tense but never actually going over the edge. She seemed to calm down a little tonight...hoping for a good weekend for my girl!



Thursday, May 11, 2017

Darling girl

Reagan has been super darling today. She dozed off before PT, but woke up just before she got here and ended up having a pretty good session. No OT today as her therapist thinks she's coming down with something! We've had a few people out this week with the sickies...must be something going around. This afternoon her nurse Latasha came by for a visit. She's moving back to Florida and leaves tomorrow so she wanted to come by and see Reagan before leaving. Reagan was in a darling mood and very happy to see her!! Reagan has been quite the sweetie today, but she did doze off again just in time for school. She slept until 5pm or so and has been awake and adorable the rest of the night. A little vocal...demanding our attention...but that's OK. This girl, she gets what she wants!




Wednesday, May 10, 2017

Cardiology follow up

Reagan had her cardiology appointment first thing this morning. Not a huge fan of early morning doctors appts, getting stuck in traffic, having to figure out a way for her brother to get to school, having to do meds in the car, etc...but this was a followup appt after the irregular EKG in Houston, so we took what we could get. They first did an EKG and then an echo. Whenever they decide to go ahead a do the echo (especially after taking longer than normal to do the EKG), it makes me a little nervous! Thankfully they both came back normal! Reagan was in a great mood today. After we got home from her appt, we went out onto the back porch for a while. It was an overcast day so it wasn't as sunny/hot as it's been lately. We pushed her in the swing and she started to doze! Sweet girl. We stayed outside until it was time for me to go get her brother, then I took her upstairs where she proceeded to snooze even more! No school for this sleepy girl today!