Wednesday, March 14, 2018
Reagan has had a wonderful streak of 10 good days in a row! That's the longest streak in a while (the last two were only 5 and 4 days). She was super calm early last week, then had several super vocal/kooky days with increased tone, then the last two days she was very calm/serious and then today she woke up crying. Ugh. It sure was nice while it lasted. I'm really hoping she pulls out of this quickly and wakes up tomorrow feeling much improved. She's been pretty miserable today. Pain medicines are only helping for 2hrs instead of 4. Staggering helps, but sometimes still falls short. Sweet girl. Her mouth and lips are all dry. Her left hand has a crack along the knuckle that we're having to keep bandaged (too much time in her mouth the last few days). Please keep my girl in your prayers. Hoping for a quick recovery!
Saturday, March 10, 2018
This morning Mike went fishing while the kiddos and I hung out. Reagan got in some new clothes I had ordered for her, so we played dress up. The company Wildflowers Clothing is a new sister company of Kelly's Kids (the company Ryan has modeled for). There have only been a few releases, and this was the first one that we have seen. The stuff is ADORABLE. So well made and detailed, I loved it all. And the fabrics...SO soft. It's girls only, so lots of dresses and everything is maximum cuteness. The way you get them is through consultants/pop up shops that they have, where you can see the different pieces and then create a wish list. The consultant places your order for you at a later time and you get what happens to be still available. You have 2 weeks to try it all on and then return what you don't want (free return shipping). So now we must make some difficult decisions...please comment below with your favorites (I'm a terrible decision maker)! Just a side note, my model was not super compliant today. Very high tone and rolly and wouldn't let me fix her hair...messy hair, don't care!
This first outfit is a top and pants...the top I LOVE is the softest poplin with ribbon detail and the pants are ridiculously soft/stretchy jersey. Although the top flairs out, it was still a bit of a challenge to get on this tight armed girl. Once on, it seemed to fit well.
The second outfit is a top and pants both made out of the stretchy soft jersey. I like the horses on this one and the coordinating, yet different patterns.
The third outfit is a dress and leggings. This originally was probably my least favorite (as I'm not a huge fan of the orange flower pattern) but the fit of this dress is just so cute and the pattern on the pants/top of the dress...pretty darling.
The forth outfit is probably one of my favorite dresses EVER. This dress and leggings is just beyond cute. The rainbow fabric, with the lemon fabric, and the cut and trim on this dress...I love it. It however is not practical for Reagan. It has a beautiful open back, but is a little loose in the top in the front. I SO wanted this dress for her, but she would probably only wear it once for a photoshoot and then never again, so it's not the most practical purchase.
The last is a super cute tank top. I didn't get any pants to go with this, so we just tried it on with some pants she already has. I loved this, again it's super soft jersey, BUT it's a size 14 and it still looks small/short (most of the other things I ordered were plenty big in a size 12).
We also got a few more pieces that I will include for you to see, but these lost out to the others and didn't make the first cut (so we didn't even try them on).
Thursday, March 8, 2018
Reagan had a pretty good day today. While there was a definite increase in tone today compared to Sun-Wed (she's been super loosey goosey), she's still been in a pretty good mood. More vocal, but OK. She had an evaluation with a new PT today. I'm pretty excited to get things moving with this PT. A) It's been almost a month now that Reagan has been without PT (thankfully I think the hippotherapy has been filling that void) and B) this particular therapist is trained in the Feldenkrais method which is something we did many years ago with Reagan. Very interested to see how she works with Reagan. Hoping this change of pace is a good thing for my girl. This afternoon she had OT. She was a little argumentative, but she participated. This afternoon she was very rolly. Rolling over onto her tummy a lot. Really moving around. Tonight she had a bit of a clonidine freak out tonight at bedtime. Went from calm, to crazy just like that. Poor girl. Hoping she can settle down and get some sleep tonight. Not sure what to expect tomorrow...
Wednesday, March 7, 2018
Today Reagan had her 3rd horseback riding/hippotherapy lesson. She has been super loosey goosey the last several days, not the best scenario for riding but we made it work. She was calm and happy, but as soon as we got out in the wind (it was a little cooler again today), she was very sensitive/flinchy. Lots of tongue action. This girl is NOT a fan of wind. She did a good job nonetheless. There was a bit of a scary situation where the horse decided to just up and walk off the trail (toward food) and they lifted Reagan up off the horse very quickly. Thankfully the instructor is very tall/strong. Another great session. So glad that we've found this for Reagan. It's great that she gets out of the house and gets to experience this once a week. Her insurance covers 10 visits a year, after that we'll have to figure something out. This is definitely something we want to continue.
Tuesday, March 6, 2018
Today was Ryan's last soccer game. Ryan has been playing soccer at the YMCA. A very noncompetitive beginners soccer league. It's been a challenge because Ryan has a tendency to get very handsy when playing, so I'm constantly having to yell at him to keep his hands to himself. Needless to say, it's been a little stressful, but I do think he has enjoyed it. The kids on his team are mostly from other schools, but there is one little boy on his team that is actually in his kindergarten class and one little girl that is also in kinder (in another class) but sits beside Ryan at pick up every day. We did not sign up for the spring league...I think we'll wait and maybe try again during the summer. It's just hard trying to juggle it on school nights. I do think he would enjoy actually playing outside though, instead of in a gym (winter league plays in the gym). In reality, I think contact football is more of his sport. He really likes running into kids! ;)
Monday, March 5, 2018
Reagan had a GI appt this morning. We did an early session of speech and then drove to Round Rock for her appt. Reagan's GI doc that she's had for years just left to go work in Dubui and he recommended us transferring over to this Dr. One huge surprise was Reagan's weight. We weighed her at the appt and she now weighs 70lbs! That means she's gained ~10-15lbs on this new formula. The interesting thing is, we've had her on almost the exact same amount of calories as her previous formula. But this new formula (Kate Farms) is organic and obviously better metabolized by her. Her new Dr is happy that she's put on some weight, but that much that quickly is something we definitely need to keep an eye on. We don't want this trend to continue, we already are struggling to lift/carry her. It was a pretty quick appointment, we just went over Reagan's history and that was about it. We headed home and even got back in time for Grandma and I to go see a movie. It's been nice to have Grandma around, but I'm afraid I am a little allergic to her dogs. I've been sneezing the whole time they've been here. I would like to get a dog again at some point, Ryan has loved playing with the puppy, but I don't know how I'll survive it! Maybe a smaller dog would have less allergens??
Saturday, March 3, 2018
Today was Ryan's birthday party. It was also a bad day for our girl. Thankfully we had a nurse working this morning and one for this afternoon to be here during Ryan's party. She slept a lot, so that was good, but she was pretty upset while awake. This is the first solo party Ryan has ever had. With both he and Reagan having March birthdays, we've always just had joint parties at our home for both of them (that consisted mainly of family and friend of the family). But now that he's in kindergarten, we had 16 classmates to invite, so we figured we'd have the party at a bounce place. We had a pretty good turnout, more than half of his classmates were there plus siblings so we had about 20+ kids (5 classmates RSVP'd that they couldn't make it and 2 dropped out last minute due to illness). Not a bad turnout. Grandma made another fabulous cake. I ordered some super cute cookies for party favors (that saved some stress). Ryan had a blast. He was all sweaty and red faced by the time we did pizza/cake. Then he was ready to leave so he could get home and open presents. He had a great day and we're all ready to crash!